"Just for Real!"

Holly saw her suitcase and decided that she wanted to go to Florida

http://www.youtube.com/watch?v=Nr_EUaTNCwE

She decided to pack her pillow and had no more room for all her toys, so she picked "Just One" to bring

http://www.youtube.com/watch?v=0X9b5awBqKs

I told her that I wasn't going to pack my suitcase and that going to Florida was Just for Pretend Then she says "No Mommy, Just For Real" and proceeds to pack her blanket too.

http://www.youtube.com/watch?v=83o3Oa_Y_6w

That's My Tutu!

Here is Holly Spinning around and around in a circle

http://www.youtube.com/watch?v=eA90T7xI_3s

Holly was doing a ballet show for me. She was both Singing and Dancing, The song was "I can Fly" My guess is perhaps she got it from Peter Pan? At the end she decides to play "Cinderelly" and take Hello Kitty's "Sash, beads, and Tutu!"

http://www.youtube.com/watch?v=If1YJCeeg6Q

Monkey Bars

http://www.youtube.com/watch?v=FQ6ytMOchGY

Check out this awesome video of Holly climbing!

The Ride Home, Notes About the Trip, Videos

The ride home from Disney was not nearly as fun as the ride there, I'm not sure if it was the lack of exciting anticipation to start the vacation or the fact that we had to begin with LA traffic but it took us forever to get out of the city and actually on the road. We had to get gas and then Holly had a super messy diaper then when we got over the mountain and pasted six flags and decided to stop for some food. Holly had a lot of energy so we went to a mcDonalds with an indoor playground which was fun but all this was add into to the length of our trip. Later we stopped again because I had to use the bathroom and ran out of my drink at Coalinga and when I opened the car door I felt like I was going to melt and the 1 minute walk inside made me feel like I was cooking. It was much hotter on this day driving home then when we drove to Disney. Later I checked what the temperature was and discovered it had been 105. I think it was around 7:45 when we got home. That said there were lots of fun parts of our road trip too. Holly had new Princess dolls and she really liked them. We all also spent a lot of time singing in the car, and I got lots of time to chit chat with Joel. Holly has recently "learned" to sing herself. it has been really exciting for me. Sometimes her singing is more like shouting, but it is a long group of memorized words in a sing song like voice, and I have several video's of her little songs here.

Happy Birthday
http://www.youtube.com/watch?v=WAKvDeoXm9Y

So we have been learning time based on events, so our trip to "Tinkerbell's Castle" was after mommy's, Sara's, and Chloe's Birthday. Then she wanted to know when Daddy's Birthday was. We told her it was after Tinkerbell's Castle, and Kaylee's Birthday. Next Month. Sometimes though, she doesn't quite yet get how long away those times are. Here she decided to sing Happy Birthday to Daddy.

Rock-a-bye Tinkerbell
http://www.youtube.com/watch?v=jmRLlk6dJKI

Here she is singing Rock-a-bye baby to Tinkerbell. It is one of the songs I sing to her and I have to replace baby with Mommy, or Daddy, or Chloe, or a friend from school. In this version she decided to sing it for Tinkerbell.

Holly Singing in Car
http://www.youtube.com/watch?v=Dyag5cf1_vc

I was trying to catch her singing Doe a Deer as it makes my heart super happy but I only got the tale end and then she begins Rock-a-Bye baby in a tree top. The drive home from Disney to Berkeley is long and she has to entertain herself somehow :-) She actually sang Doe a Deer several times but we didn't have the camera ready

Resists singing
http://www.youtube.com/watch?v=90lir8rVAic

After singing Doe a Deer several times, now that we have the video camera out and ready to refusing to sing it anymore. She is such a little gremlin, so cute in her trouble makingness that you just got to laugh. She know we want her to do something so she will do anything but that. Sigh! Another thing Holly did to entertain herself was grab the camera from Daddy and take pictures. She took about 50 but I spared you by only posting a few shots. Most had her chubby little fingers in them. Many of them were of Mommy and then she had lots of the window as she tried to get pictures of outside. It was cute. She doesn't get that she has to aim the camera and she puts it up to her face, facing herself so there were several pictures of a smooshed nose.

So the last thing I wanted to talk about was the Guest Assistance Pass we used at Disney. This made the trip for us and I could not imagine the very different experience we might have had without it. On the first day we waited in line for Tinkerbell, and Daddy waited in like for Rapunzel, these lines were short compared to later days and the wait in many of the ride lines. Also on the first day it was relatively cool still, overcast and we waited in line in a shady area for those two character meets. That said, Holly was quite a little terror, sitting still was extremely difficult for her, and the heat was super agitating. Also you are not allowed regularly to take stroller's in line with you, and without the stroller it would have been a total nightmare. So the Guest Assistance Pass is for Guests with Special needs. the most obvious would be someone in a wheel chair, but because that is obvious they don't always need our pass. For guests without visible disabilities or issues you can get this pass from Guest Services. In our case I had my doctor write me a note stating her diagnosis of Fragile X, but according to the websites the note is not required, just makes it easier.

They asked me to describe her issues, Attention, Waiting, Sitting Still, Sensory issues, Anxiety with noise and crowds, and heat and light sensitivity were a few. if we had seen any of the shows this would have allowed us preferred seating in the front right before the show would start and access to an exit, but we decided not to risk it this trip. It also allowed us to access rides through the accessible entrance or in some cases the fast pass entrance, and in other cases that access was through the exit of the ride.

In most cases we would go to this entrance and either one other family or no one in front of us. We would be greeted and then have to wait one cycle of the ride, so if they were loading the ride or it was going we would be on the next 1-2 ride revolutions. Typically our wait was 5 at most 10 minutes and we were in a shaded, not crowded area where Holly would not be disruptive. Then we were able to board the ride. In many situations the actual ride wait was hot, cramped and a wait of at least 45 minutes. While this is not designed to "Cut" the lines, I felt like it made our experience doable.

I feel like without this, not only would we have been able to do maybe 25% of what we did, Holly would have been miserable and spent much of her time wanting to go home, I don't think we would have lasted the heat of the second and third day, and our trip would not have been successful. This also allow us to push Holly a little bit and try things. In one occasion I rode a ride first to see what it was like and then decided not to take Holly onto it. Also it would have allowed Joel and I to take turns riding each one waiting with Holly while the other rode, if we actually went on any of the grown up rides together.

Finally Kathy was pregnant, so I think this helped her out a lot with the limiting of the amount of standing we had to do. I highly recommend this pass for anyone who has a child with special needs. Disney itself is overwhelming, scary, and a sensory explosion. Any opportunity to minimize possible negative moments makes the trip all the better. Holly simply does not have the patience of other kids, the tolerance, or the impulse control to handle long lines. Also the pass allowed us to bring the stroller with us where ever we needed to which was nice, she had a safe place to hide when she needed one.

Princess Lunch (Video's)

Here is Ariel's grotto, on California's great boardwalkAs soon as we came in we changed and the girls got ready to meet ArielShe was greeting each guest before we sat down at our table.The grotto was much more formal then the breakfast from the previous day.We had an assigned seat and only a short time allowed to visit with Ariel as other guests were waitingBut the girls were each able to give her a hug and have there books signedThe were also able to watch her for a long time, and sometimes just seeing the princess if half the fun.Holly is so cute when she gives hugs, she for some reason always bends half over.Our table was outside, I was worried about the heat but there was a breeze from the waterIn only moments the first of the Royal princesses were announced and we met AuroraOr Sleeping Beauty as she is sometimes called. Holly was so excited! She told her she saw her in the parade the day before and gave her the book to signChloe was a little Awe Struck too at first, We just watched the movie for the first time this week and learned another alias is Briar Rose.She was so friendly and personable, the film is a classic and so beautifully doneSleeping beauty spent a lot of time with us, so we could get lots of picturesHolly was totally admiring her gown, and told her she was wearing Rapunzel's gown.We were not going to meet her at lunch so she would have a unique dressBefore too long they announced Cinderella and she was upon us.She was very elegant and Holly was very taken with her.The girls were all giggle and smiles from ear to earI think Cinderella was asking Holly some questions and she kept making her "hmmm" faceWhen she is put on the spot she just giggles, I guess she was speechlessThe food was actually really good, I thought. We started with a try of three appetizer plattersFruit, yummy watermelon and strawberries, fresh cheese and yummy saladreally good dinner rolls, and delicious Pomegranate lemonadeNext the lovely Belle was Announced and she was upon us. Her gown was gorgeousHolly gave her the Autograph book straight away. Its a shock we got the girls to eat lunch at all.Just look at that smile as she holds Belle's hand and looks up at herIt is so precious. Mommy and daddy were trying to eat our main courseI had a really yummy tomato, Cheesy, Pasta with spicy sausage I liked it a lot.I forgot what Joel had, he enjoyed it but it was not his favorite.On the other hand, Belle I think was Chloe's favorite, in her matching dress she was adorableHere is Holly again, Awestruck. It has been two weeks now and she still every day talks about meeting all the PrincessesShe has also since watched the whole movie through, and asked Belle where Beast was (whom she likes better then the prince)Finally it was Snow White. Holly seems to be really into her, likes its in her blood or something. She didn't know the story or the seven dwarfs, however a few days ago we watched the film for the first time, she sat through the entire thing and loved it.It's hard to balance the princesses, pictures, and a toddler so I almost forgot to take video. But just in time for the final princess I remembered. Here is Holly having Snow White sign her book:

http://www.youtube.com/watch?v=JoIDGgZaPj0

Next the girls posed and took pictures with Snow White.

http://www.youtube.com/watch?v=16VXKAI2hdw

I just can't get over there smiles, a picture says a thousand words, they were so super happy.I love how Holly looks up at all of the princesses, straight in the eyesAfter we took photo's the girls each got to give her a hug too.I have one last video of that here:

http://www.youtube.com/watch?v=ezGZ0kfNOx8

The experience was sort of exhausting, to meet one princess after another, it takes a lot out of you emotionally.Finally they served us a delicious desert. The girls were a little antsy and wanted to explore the patio and look at the waterThen our time was over and we headed out. It was definately worth the money to meet all five princessesIt will be wonderful memories for years to come.